It's International Day of People with Disabilities and in this week's FamilyFriday, we hear from mum Hannah about how her daughter Alice continues to beat the odds despite being born with hydranencephaly. Read More
It’s Black Friday, the last pay day before Christmas. Did you know that, thanks to Handcrafted by Tŷ Hafan , you can buy locally produced, high quality, beautiful and affordable upcycled and recycled products with every sale supporting children with life-limiting conditions and their families in Wales? Here Penny Collins, from Handcrafted by Tŷ Hafan, explains more. Read More
Susan and Marshall are the faces of Tŷ Hafan’s Christmas Appeal. Here, Susan, who lives with Marshall and his big brother Tyler in Bridgend explains what Tŷ Hafan means to her and her family. Read More
School support worker Sara Martin from Newport already had her eye on a wedding dress from a high street retailer when she saw a social media post promoting our new bridal boutique in Tŷ Hafan ’s Emporium Shop in Abergavenny Read More
Here we revisit a Family Friday blog first published last year, by Tŷ Hafan dad James Meacham, whose son Thomas was cared for by Tŷ Hafan before he died at the age of nine in June 2019. Read More
Tomorrow is the start of International Brain Tumour Awareness Week. Here dad Lee McCabe shares the story of his son Finn, who was cared for by Tŷ Hafan after he was diagnosed with an incurable brain tumour at the age of 11. Read More
Twelve year old Emily Harmsworth has raised more than £1,100 in memory of her little brother Peter, who was a regular visitor at Tŷ Hafan before he died at the age of nine in 2019. Read More
Peter's first serious cycle in 37 years was a massive 425 miles in four days ride from Radyr Golf Club to St Andrews in Scotland in aid of Tŷ Hafan! Read More
Did you know that you can leave a gift for Tŷ Hafan in your will? Our supporter Elisabeth Wheeler has chosen to do just that. Here, she explains why. Read More
Next month, James Cooke will be running his first ever marathon, across the Brecon Beacons, in memory of his son Fynley who was cared for by Tŷ Hafan. Read More
“So much has happened in my life with Cai. When he was little he was diagnosed with the ultra-rare Vici Syndrome and even though he has died I take a lot of comfort from the way it happened and how it happened. Read More
As the first anniversary of her death in July 2020 approaches, Beverley shares her late daughter’s story, and how Tŷ Hafan helped Jalene to have the best life, and death, possible. Read More
Sophie and Sean were just 22 when their little son Ollie was diagnosed with the ultra-rare MOSAIC Syndrome. Here Sophie shares their story and explains how Tŷ Hafan is, quite literally, a lifeline for the whole family. Read More
Jaiden, 14, has counselling and music therapy with Tŷ Hafan and all from the comfort of his own home in Llandrindod Wells. Here, he and mum, Anne-Marie, share their story and explain what Tŷ Hafan means to them. Read More
My name is Sarah and I am Mum of two beautiful girls Molly and Emily who both have Rett syndrome. Read More
Harley, a “cheeky chops” seven-year-old from Llanelli, is definitely one of a kind. He had his first operation on a cystic lung when he was still inside his mum Becca’s tummy and at two days old, he had open surgery to remove most of his left lung. Read More
Just hours after Osian Liddlell was born, his parents' joy turned to fear, as their precious baby boy was transferred to the neo natal intensive care unit. A rash had spread across his face and body and doctors immediately started carrying out tests to find out why. Read More
When baby Riley came into the world 7 years ago, his parents couldn't wait for him to meet his three older brothers. But as soon as Riley was born, his parents knew something wasn't quite right. Read More
Sisters Molly and Emily bring so much joy and love to their mum and dad's lives, but since they were born, life is not how their parents James and Sarah ever expected it to be. Both girls were born healthy babies two years apart but as time went on, their parents noticed their daughters weren't developing as they should be. Read More
Doctors diagnosed Lilly-May with Leukodystrophy, a life-limiting brain condition that affects the central nervous system, which is responsible for nearly everything we do from our heartbeats to walking. Read More
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