Our community teams are in constant contact with families like Kanon’s, who are sharing their story with you today. They provide support, guidance and have even been out delivering food parcels. The uptake in our virtual activities has soared. Our team in the hospice has faced tough times wearing PPE for long periods. However, everyone has adapted and they’ve provided critical care, support and help to families in utter desperation.
With Christmas approaching and the winter season upon us, it’s inevitable that more families will reach out, and we will make sure we’re ready.
Christmas at Tŷ Hafan is typically full of noise, laughter, excited children and lots of smiles. We know Christmas will be very different for so many of us this year, but in true Tŷ Hafan style we are adapting to the measures and will provide fun and laughter in a different way.
Our Christmas panto will be livestreamed every week; our wonderful staff will be dressing up and putting on a virtual show to entertain families across Wales. We are planning a virtual winter wonderland party for the siblings, who so often miss out due to their brother or sisters' life limiting condition. Using social media channels we will share Christmas activities for families to take part in, and we’ll bring the magic of Christmas to all with a virtual Carol concert.
This year the candlelight service for our bereaved families will be held virtually so that all the families can take part.
But, we cannot do any of this without you.
During the festive period we will continue to be a lifeline for those families who need it the most. The hospice will be ready for crisis, end of life and symptom management stays. We will be there to pull families back up when they simply can’t cope anymore.
A donation from you this Christmas will provide the greatest gift to one of our families; the gift of warmth, comfort, care and support, whether that’s in the hospice, over the phone, or virtually it will make a huge difference.
From all of us at Tŷ Hafan stay safe and have a wonderful Christmas.
Give the gift of light this Christmas by purchasing a Tŷ Hafan Christmas star.
Please help us to continue bringing warmth, comfort and care this Christmas.
Kanon is a bright and bubbly, little seven year old boy who bravely carries on even when he is in excruciating pain. He loves going to school and socialising with his friends. However, school is often fraught with dangers as his life-limiting condition Epidermolysis Bullosa means that any minor impact on his skin causes blisters that require immediate treatment and morphine to overcome the pain.
Lockdown has been very frightening for us as we are worried that Kanon might get Covid-19. However, Shirley our Family Support Practitioner has been incredible throughout the pandemic. She is always there on the phone, she helped us to get the shielding letter and food parcels, she even wrote a letter to my boss so I could be at home with my wife and Kanon, and we don’t know what we would have done without her help.
I know if we need help, we can call Shirley and it makes us feel safe knowing she is there.
Christmas at Tŷ Hafan is very special, we like to see Kanon’s face when he watches the panto and sees Father Christmas. We know it will be different this year, but Tŷ Hafan was there when we first needed them and 7 years on, they are still helping us. We would be lost without Shirley, so if you can give to one charity please make it Tŷ Hafan.
A gift of £23 could pay for an hour of support from a Family Support Practitioner, who is at the end of the phone, for families who are struggling to cope at Christmas time.