Ty Hafan

#family friday

katie's story

If you were to pass me in the street you would think that I am a healthy teenage girl, but behind all of this, lies a story I never really open up about unless you know me.

Before I was born, doctors noticed that there was something wrong with my heart, but it wasn’t until I was born that doctors diagnosed a heart defect which is called Hypertrophic Cardiomyopathy. I also have Noonan-Like Syndrome, which means extremely slow or restricted growth.

katies story

Even though my Hypertrophic Cardiomyopathy is not severe currently, it was when I was a baby and it has caused hundreds of hospital stays in the last 17 years.

It is incredibly difficult living with a heart defect, especially when you become a teenager and are restricted from things a normal teenager would do. But throughout it all, I’m okay, and I have met some amazing people on the walk through my journey.

Tyˆ Hafan is a wonderful, loving place and every member of staff is so truly welcoming and comforting. As soon as I walk through the doors, this feeling of peace comes over me. Since going to Tyˆ Hafan I have created the most beautiful bond with Casey Hard and his family. They have truly inspired me on how they can stay so strong when so much goes wrong.

Each and every one of them are truly amazing including Casey’s Nan, Tracy. Her messages to me have been nothing but a tower of strength for me.

If there’s one person I need to thank in this world, it’s my Mum. She has been my hero and I wouldn’t be here today if it wasn’t for her. After the trials, the challenges that you face in life you may question the existence in God. It took me years to finally believe, but I do truly think that he’s there.

Looking into the future, I hope to become a soap actress (this has always been my childhood dream) and also to become a role model for people that are experiencing what I have gone through as a child and tell them that “it’s okay” and to be strong.

There’s always going to be big challenges that I have to face, but I will face them with strength, hope and faith. I hope to bring comfort to each and every family supported by Tyˆ Hafan through this quote:

“Life is not measured by the number of breaths we take, but by the moments that take our breath away.”

This is one of my favourite quotes and I always get strength from it.

Katie will be attending Chef's Night Out this Saturday (January 31, 2015) along with her mum Lisa who will also be speaking on the night.